"Alone we can do so little; together we can do so much."
Helen Keller
Resources
For Those Living with Dementia,
Caregivers, Students,
and Community Members
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Information for Everyone
Below you will find four sections with resources that I have personally reviewed and recommend to increase awareness and understanding of dementia care.
The four sections are separated and tailored to specific groups: people living with dementia, caregivers, students wanting to learn more about dementia and dementia care, and community members.
Please check these resources frequently as I will add additional links with research, news, and support for those living with dementia as well as their support systems.
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I have dementia.
Alzheimer’s Association: I Have Alzheimer’s
https://www.alz.org/help-support/i-have-alz
Alzheimer’s Association: 10 Early Signs and Symptoms of Alzheimer’s and Dementia
https://www.alz.org/alzheimers-dementia/10_signs
Alzheimer’s Association: Inside the Brain
https://www.alz.org/alzheimers-dementia/what-is-alzheimers/brain-tour
Alzheimer’s Association Planning for the Future: Legal, Financial and Care Considerations After a Dementia Diagnosis
Alzheimer’s Association: How to respond to dementia-related behaviors
Alzheimer’s Society: Eating and drinking
https://www.alzheimers.org.uk/sites/default/files/pdf/factsheet_eating_and_drinking.pdf
Alzheimer’s Society: Exercise types and ideas for people with dementia
https://www.alzheimers.org.uk/get-support/living-with-dementia/exercise-types-ideas
CARE365: Best Cell Phones for Dementia Patients
The Geriatric Dietitian: MIND Diet Meal Plan and Shopping List
https://thegeriatricdietitian.com/mind-diet-meal-plan/
Hospice Foundation of America: The Difference Between Hospice Care and Palliative Care
https://hospicefoundation.org/the-difference-between-hospice-care-and-palliative-care/
Massachusetts General Hospital: McCance Center for Brain Health Brain Care Score
https://www.massgeneral.org/neurology/mccance-center/about/brain-care-score
Mayo Clinic: Alzheimer’s - Managing Sleep Problems
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20047832
Michael J. Fox Foundation for Parkinson’s Research
National Institute on Aging: What Are Palliative Care and Hospice Care?
https://www.nia.nih.gov/health/hospice-and-palliative-care/what-are-palliative-care-and-hospice-care
Pacific Neuroscience Institute: Foods That May Prevent Dementia
While there is no known cure for dementia, many studies have shown that diet can reduce the risk of developing dementia and possibly slow the rate of decline after a diagnosis has been made.
https://www.pacificneuroscienceinstitute.org/blog/brain-health/foods-that-may-prevent-dementia/
Mayo Clinic: Palliative Care
Parkinson’s Foundation: https://www.parkinson.org/
Rock Steady Boxing: Fighting Back Against Parkinson’s Disease
Sleep Foundation: Dementia and Sleep
https://www.sleepfoundation.org/mental-health/dementia-and-sleep
U.S. Department of Veterans Affairs: Parkinson’s Disease Research, Education and Clinical Centers
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I care for someone living with dementia.
Alzheimer’s Association: Publications
I highly recommend following this link as this page of publications provides over 100 articles related to nearly any topic related to dementia that you would want to learn about.
https://www.alz.org/help-support/resources/publications
Alzheimer’s Association: 10 Steps to Approach Memory Concerns
Alzheimer’s Association: Caregiver Stress Check
https://www.alz.org/help-support/caregiving/caregiver-health/caregiver-stress-check
Alzheimer’s Association: Encouraging Caregiver Health and Well-Being
Alzheimer’s Association: 10 Early Signs and Symptoms of Alzheimer’s and Dementia
https://www.alz.org/alzheimers-dementia/10_signs
Alzheimer’s Association: Be a Healthy Caregiver
https://www.alz.org/help-support/caregiving/caregiver-health/be_a_healthy_caregiver
Alzheimer’s Association: Inside the Brain
https://www.alz.org/alzheimers-dementia/what-is-alzheimers/brain-tour
Alzheimer’s Association: Grief and Loss as Alzheimer’s Progresses
https://www.alz.org/help-support/caregiving/caregiver-health/grief-loss-as-alzheimers-progresses
Alzheimer’s Association Planning for the Future: Legal, Financial and Care Considerations After a Dementia Diagnosis
Alzheimer’s Association: How to respond to dementia-related behaviors
Alzheimer’s Society: Eating and drinking
https://www.alzheimers.org.uk/sites/default/files/pdf/factsheet_eating_and_drinking.pdf
Alzheimer’s Society: Exercise types and ideas for people with dementia
https://www.alzheimers.org.uk/get-support/living-with-dementia/exercise-types-ideas
Center to Advance Palliative Care: How to Provide Excellent Dementia Care for Patients with Dementia - and Their Families
CARE365: Best Cell Phones for Dementia Patients
Caring: Finding the Right Caregiver Support and Resources
https://www.caring.com/resources/caregiver-support
Family Caregiver Alliance
Family Caregiver Alliance: Seeking That Elusive Good Night Sleep
https://www.caregiver.org/resource/seeking-elusive-good-night-sleep/
The Geriatric Dietitian: MIND Diet Meal Plan and Shopping List
https://thegeriatricdietitian.com/mind-diet-meal-plan/
Hospice Foundation of America: The Difference Between Hospice Care and Palliative Care
https://hospicefoundation.org/the-difference-between-hospice-care-and-palliative-care/
Massachusetts General Hospital: McCance Center for Brain Health Brain Care Score
https://www.massgeneral.org/neurology/mccance-center/about/brain-care-score
Mayo Clinic: Alzheimer’s - Managing Sleep Problems
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20047832
Michael J. Fox Foundation for Parkinson’s Research
National Institute on Aging: What Are Palliative Care and Hospice Care?
https://www.nia.nih.gov/health/hospice-and-palliative-care/what-are-palliative-care-and-hospice-care
Pacific Neuroscience Institute: Foods That May Prevent Dementia
While there is no known cure for dementia, many studies have shown that diet can reduce the risk of developing dementia and possibly slow the rate of decline after a diagnosis has been made.
https://www.pacificneuroscienceinstitute.org/blog/brain-health/foods-that-may-prevent-dementia/
Mayo Clinic: Palliative Care
Parkinson’s Foundation: https://www.parkinson.org/
Parkinson’s Foundation: For Care Partners
https://www.parkinson.org/resources-support/carepartners
Rock Steady Boxing: Fighting Back Against Parkinson’s Disease
Sleep Foundation: Dementia and Sleep
https://www.sleepfoundation.org/mental-health/dementia-and-sleep
U.S. Department of Veterans Affairs: Parkinson’s Disease Research, Education and Clinical Centers
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I am a student wanting to learn more about dementia and dementia caregiving.
Alzheimer’s Association: Publications
I highly recommend following this link as this page of publications provides over 100 articles related to nearly any topic related to dementia that you would want to learn about.
https://www.alz.org/help-support/resources/publications
Alzheimer’s Association: 10 Early Signs and Symptoms of Alzheimer’s and Dementia
https://www.alz.org/alzheimers-dementia/10_signs
Alzheimer’s Association: 10 Steps to Approach Memory Concerns
Alzheimer’s Association: Inside the Brain
https://www.alz.org/alzheimers-dementia/what-is-alzheimers/brain-tour
Alzheimer’s Association: Be a Healthy Caregiver
https://www.alz.org/help-support/caregiving/caregiver-health/be_a_healthy_caregiver
Alzheimer’s Association: Encouraging Caregiver Health and Well-Being
Alzheimer’s Association: How to respond to dementia-related behaviors
Alzheimer’s Society: Eating and drinking
https://www.alzheimers.org.uk/sites/default/files/pdf/factsheet_eating_and_drinking.pdf
Alzheimer’s Society: Exercise types and ideas for people with dementia
https://www.alzheimers.org.uk/get-support/living-with-dementia/exercise-types-ideas
Center to Advance Palliative Care: How to Provide Excellent Dementia Care for Patients with Dementia - and Their Families
The Geriatric Dietitian: MIND Diet Meal Plan and Shopping List
https://thegeriatricdietitian.com/mind-diet-meal-plan/
Hospice Foundation of America: The Difference Between Hospice Care and Palliative Care
https://hospicefoundation.org/the-difference-between-hospice-care-and-palliative-care/
Mayo Clinic: Alzheimer’s - Managing Sleep Problems
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20047832
Massachusetts General Hospital: McCance Center for Brain Health Brain Care Score
https://www.massgeneral.org/neurology/mccance-center/about/brain-care-score
Mayo Clinic: Palliative Care
Michael J. Fox Foundation for Parkinson’s Research
National Institute on Aging: What Are Palliative Care and Hospice Care?
https://www.nia.nih.gov/health/hospice-and-palliative-care/what-are-palliative-care-and-hospice-care
National Institute of Neurological Disorders and Stroke
Pacific Neuroscience Institute: Foods That May Prevent Dementia
While there is no known cure for dementia, many studies have shown that diet can reduce the risk of developing dementia and possibly slow the rate of decline after a diagnosis has been made.
https://www.pacificneuroscienceinstitute.org/blog/brain-health/foods-that-may-prevent-dementia/
Parkinson’s Foundation: https://www.parkinson.org/
Rock Steady Boxing: Fighting Back Against Parkinson’s Disease
Sleep Foundation: Dementia and Sleep
https://www.sleepfoundation.org/mental-health/dementia-and-sleep
U.S. Department of Veterans Affairs: Parkinson’s Disease Research, Education and Clinical Centers
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I would like to support my community by increasing my knowledge and awareness about dementia.
Alzheimer’s Association: Publications
I highly recommend following this link as this page of publications provides over 100 articles related to nearly any topic related to dementia that you would want to learn about.
https://www.alz.org/help-support/resources/publications
Alzheimer’s Association: 10 Steps to Approach Memory Concerns
Alzheimer’s Association: 10 Early Signs and Symptoms of Alzheimer’s and Dementia
https://www.alz.org/alzheimers-dementia/10_signs
Alzheimer’s Association: Inside the Brain
https://www.alz.org/alzheimers-dementia/what-is-alzheimers/brain-tour
Alzheimer’s Association: Be a Healthy Caregiver
https://www.alz.org/help-support/caregiving/caregiver-health/be_a_healthy_caregiver
Alzheimer’s Association: Grief and Loss as Alzheimer’s Progresses
https://www.alz.org/help-support/caregiving/caregiver-health/grief-loss-as-alzheimers-progresses
Alzheimer’s Association: Encouraging Caregiver Health and Well-Being
Alzheimer’s Association: How to respond to dementia-related behaviors
Alzheimer’s Society: Eating and drinking
https://www.alzheimers.org.uk/sites/default/files/pdf/factsheet_eating_and_drinking.pdf
Alzheimer’s Society: Exercise types and ideas for people with dementia
https://www.alzheimers.org.uk/get-support/living-with-dementia/exercise-types-ideas
Caring: Finding the Right Caregiver Support and Resources
https://www.caring.com/resources/caregiver-support
Family Caregiver Alliance
Hospice Foundation of America: The Difference Between Hospice Care and Palliative Care
https://hospicefoundation.org/the-difference-between-hospice-care-and-palliative-care/
Massachusetts General Hospital: McCance Center for Brain Health Brain Care Score
https://www.massgeneral.org/neurology/mccance-center/about/brain-care-score
Mayo Clinic: Alzheimer’s - Managing Sleep Problems
https://www.mayoclinic.org/diseases-conditions/alzheimers-disease/in-depth/alzheimers/art-20047832
Michael J. Fox Foundation for Parkinson’s Research
National Institute on Aging: What Are Palliative Care and Hospice Care?
https://www.nia.nih.gov/health/hospice-and-palliative-care/what-are-palliative-care-and-hospice-care
Pacific Neuroscience Institute: Foods That May Prevent Dementia
While there is no known cure for dementia, many studies have shown that diet can reduce the risk of developing dementia and possibly slow the rate of decline after a diagnosis has been made.
https://www.pacificneuroscienceinstitute.org/blog/brain-health/foods-that-may-prevent-dementia/
Parkinson’s Foundation: https://www.parkinson.org/
Rock Steady Boxing: Fighting Back Against Parkinson’s Disease
Sleep Foundation: Dementia and Sleep
https://www.sleepfoundation.org/mental-health/dementia-and-sleep
U.S. Department of Veterans Affairs: Parkinson’s Disease Research, Education and Clinical Centers